We were all ready and set to have surgery on Monday, well as ready as one can be. We arrived to Dr. Hillock's office for my PRE- OP appt. with our HIGH RESOLUTION MRI (who knew there was a diffrence?). Dr. Hillock met my Wonderful Mommy! Then he began to look at each film one by one, he is a quiet one. And of course I nitosha pipe up and say " hummmmmm... i am guessing this silence isn't good?" He always tells me "one thing at a time." So he looked and looked which seemed like forever and then said "he was happy that we had this MRI done before surgery." then he proceed's to tell me that it looks larger and more complicated that orginally thought. His team is not fit for the size of this surgery now and does not have the technology in Las Vegas to perform this surgery without potentially having large concequences. (tears started to well up, not gonna lie) Then he told me he needed to get some other Dr.'s to look at this so he can make sure he is seeing everything clearly. The films and all other tests have now been overnighted to UCLA and the MAYO Clinic in Minnesota! My follow-up appt is on July 22nd at 10am (its going to be a long 2 weeks). So for now the only thing we can do is PRAY for a Miracle!
Please feel free to comment here if you would like I will need to hear from alot of you over the next few weeks!
I am so grateful for the Astounding Husband I have been blessed, an Absolutley Amazing Family and the Robertson's which I was lucky enough to marry into that family.
P.S. If you call me or text me and you don't hear back from me please take no offense I love anyone that is reading this blog. ONLY ONE REQUIREMENT no tears allowed:)
This CANCER CANNOT AND WILL NOT BEAT NITOSHA AUDREY MARIE ROBERTSON!!!!
Thursday, July 8, 2010
Thursday, July 1, 2010
Being POSITIVE & staying POSITIVE...
I must REMEMBER that he only gives us what we can handle!
As most of you may know I was married to my AMAZING husband just about one year ago. Getting all excited to celebrate out anniversaryJ
Since we have been married he has been my rock though a few things but nothing like the news we received on June 3rd. I had previously been having pelvic pain that I knew could not be normal. I even saw doctors before we were married. No one ever saw anything that could be the cause. Well in early May I went to visit Dr. Lisa Roberts. She is downright amazing and is one of the best OBGYN’s in town. Plus I think I like her because she is my height, blonde hair and blue eyes. (Sound Familiar?) As I saw her, she wanted to do some testing to make sure everything was working correctly because being so young I shouldn’t have the pain I was describing. Thinking it was nothing I had the ultra sound done with minimal worries. (Kyle might differ) I had my ultra sound and was called the next day to tell me that I need to get scheduled to see the Dr. again. Later that week we found out that she had discovered a 3.3cm tumor in my uterus, and a cyst on each ovary. We then were stunned/shocked. She couldn’t tell us much without more tests. The following day I was scheduled for an MRI. I went in early got done early and just knew we had decided that we wanted the tumor out. Later that day I was called to be informed that they had found a 6.6 cm tumor on my left Ilium aka hip. The next day consisted of a CAT Scan and drinking some super delicious chalk drink. 36oz in 30mins and you can’t have water or crackers! The more test the more information we were able to receive.
We scheduled an appt with Dr. Roberts and she let us know our options with both tumors. A LOT TO TAKE IN but I had Kyle and My amazing Father in-law Lance right there by my side. Dr. Roberts wanted to see what this other tumor was up to before attempting to remove the one in my uterus. It would entail her doing a c—section surgery for a tumor not a baby. It can prevent us from getting pregnant in the future and cause much discomfort for me. She let us know that the tumor in my uterus did not appear cancerous but she couldn’t tell us much about the tumor on my hip. She then referred me out to an orthopedic surgeon. That surgeon did not want to take on this case because of its size and my history. I was then referred to Dr. Hillock an Orthopedic Oncologist.
Our first Appt with Dr. Hillock…
A chondrosarcoma is a type of cancer[1] of the cartilage. Chondrosarcoma is a cartilage-based tumor and is in a category of cancers called sarcomas. About 25% of primary bone cancers (meaning those which start in the bone) are chondrosarcomas. This disease can affect people or animals of any age, although it is more common among older people than among children. All I could think about was never having children and never being able to walk without assistance for the rest of my life. If you have ever met me you know I am a FIGHTER! I have had many operations in my life and multiple complications but never let anything stop me before. I knew this was not the time in my life I could stop. Dr. Hillock then told us that the growth was not formed like he thought by the previous test and that I would be able to walk on my own after a good amount of recovery time. And he told me that someday I will be a mother and that isn’t impossible for me. Another plus is that I will not have to have Chemo or Radiation because of the type of caner it is, it would only cause the cancer to grow at a faster rate. (Good thing because I have been growing this hair for a year and it would be a shame for me to have to start overJ) Again we are thankful this is nothing terminal! We have now scheduled the surgery for July 12th just 2 weeks after our one year anniversary. They tumor in my Uterus will have to wait its turn to come out! I will only have a short stay in the hospital which is good because I HATE HOSPITAL FOOD. I will be at home on my back for 2 months which is scary because I have a very busy personality. But I am blessed to have such a loving, caring, giving husband that will be right next to me through this whole process. Heavenly father will not give me anything I cannot handle. I have been a little fire cracker all my life and I will be forever. I have an old friend I used to work with in Washington and she is one of the strongest women I know, her mother used to always tell her… “if you think you've had the worst day of your life, there's someone out there that has it worse than you do".
Love,
Nitosha
As most of you may know I was married to my AMAZING husband just about one year ago. Getting all excited to celebrate out anniversaryJ
Since we have been married he has been my rock though a few things but nothing like the news we received on June 3rd. I had previously been having pelvic pain that I knew could not be normal. I even saw doctors before we were married. No one ever saw anything that could be the cause. Well in early May I went to visit Dr. Lisa Roberts. She is downright amazing and is one of the best OBGYN’s in town. Plus I think I like her because she is my height, blonde hair and blue eyes. (Sound Familiar?) As I saw her, she wanted to do some testing to make sure everything was working correctly because being so young I shouldn’t have the pain I was describing. Thinking it was nothing I had the ultra sound done with minimal worries. (Kyle might differ) I had my ultra sound and was called the next day to tell me that I need to get scheduled to see the Dr. again. Later that week we found out that she had discovered a 3.3cm tumor in my uterus, and a cyst on each ovary. We then were stunned/shocked. She couldn’t tell us much without more tests. The following day I was scheduled for an MRI. I went in early got done early and just knew we had decided that we wanted the tumor out. Later that day I was called to be informed that they had found a 6.6 cm tumor on my left Ilium aka hip. The next day consisted of a CAT Scan and drinking some super delicious chalk drink. 36oz in 30mins and you can’t have water or crackers! The more test the more information we were able to receive.
We scheduled an appt with Dr. Roberts and she let us know our options with both tumors. A LOT TO TAKE IN but I had Kyle and My amazing Father in-law Lance right there by my side. Dr. Roberts wanted to see what this other tumor was up to before attempting to remove the one in my uterus. It would entail her doing a c—section surgery for a tumor not a baby. It can prevent us from getting pregnant in the future and cause much discomfort for me. She let us know that the tumor in my uterus did not appear cancerous but she couldn’t tell us much about the tumor on my hip. She then referred me out to an orthopedic surgeon. That surgeon did not want to take on this case because of its size and my history. I was then referred to Dr. Hillock an Orthopedic Oncologist.
Our first Appt with Dr. Hillock…
Dr. Hillock is very straight forward yet has great bed side manner. He looked at my multiple tests. Pages upon pages of films! He explained what he saw in each one. He let me know the best case scenario and the worst. The best being that it was just a benign tumor that he would watch over time. The worst case it being a cancerous tumor that would have to be removed resulting in me not being able to walk on my own again. Mind you I am 25 years old haven’t even been married for a year and no babies. Right then I kind of just fell apart, my sweet husband came right to my side and my dear father in-law tried to calm me down. I then realized that was the worst case and that I needed to stay positive. I might want to mention that my father in law is a Dentist and boy is he smart with much more. Dr. Hillock then sent me to have a Bone Scan and scheduled me back in 2 weeks. If you are reading this you can imagine my reaction, 2 WEEKS! I am a very pro-active person. We had the bone scan done the very next week and had my appt rescheduled the following day. Dr. Hillock told us we want to see blue in the bone which meant it was cool, orange would be okay but we would watch it closely, but red isn’t something we wanted. So I though shoot I am smart I know my colors so when I picked up the films after my bone scan I wanted to prepare myself for the next day’s appt. the darn films were Black and White. For a second I thought all this radiation they had ejected in me for the test made me color blind. (not really that is just me trying to be funny) So the girls at work even wore blue the day of my appt. Dr. Hillock told me straight right when he saw the test. This is RED… and we need to get it out. HOLY COW!!! He kept talking and I of course lost it again. Poor men in that room those few days! I couldn’t hear anything after he told me that it was cancerous and that he would need to take it out.
Love,
Nitosha
Wednesday, June 30, 2010
Show some LOVE!!
I love you tosh! You are an "AMAZING" woman! I am so glad that we have become good friends! Don't forget, I am always here for you!
Kat
Kat
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